Public service message: Have you seen this about Chronic Fatigue?

Okay, look, I just came across this article about Chronic Fatigue Syndrome.
Wait, I mean this article about the inexcusable, appalling so-called research upon which pointless therapies have been prescribed for a decade for people who suffer from CFS.

Which, given the article plus following links, let me say, nobody seems yet to have proposed a really good name for this condition. Jeez, people. It is not that hard. Let me do it for you: Chronic exercise-induced myasthenia. There, see? That’s quite clear as soon as you know that myasthenia means muscle weakness.

Now, listen. Apparently this big PACE study — I mean “study” — published in Lancet a decade ago suggested that improvement all the way to full recovery might be expected for patients who availed themselves of therapy plus gradually increasing exercise. To make a long and disgraceful story short, this was totally false. The “study” was so badly conducted that, get this, suffers could simultaneously suffer from a condition serious enough to be eligible for the study while also technically — by the ridiculous criteria of the “scientists” involved — already having recovered. Way to inflate your recovery numbers, moron!

You know what’s worst about this? That Lancet published this piece of crap “study” and then refused to revisit it when it was questioned, even though the “researchers” refused to release their data or methodology.

So, so. If you or someone you know suffers from chronic exercise-induced myasthenia, allow me to suggest you read through the linked article, do some browsing among the links, and if necessary insist that your doctor look for treatments that might, you know, actually address the condition you actually have rather than this all-in-your-head fake condition the PACE “study” insists you have.

You know what this makes me think of? Unfortunately, this article I read recently suggesting that the way studies are designed and funded today means that science is inevitably moving toward shoddy, poorly-designed studies that offer unreliable conclusions. Fantastic.

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